Showing posts with label inspirational. Show all posts
Showing posts with label inspirational. Show all posts

Wednesday, April 24, 2013

Jack Carroll, 14-Year-Old ‘Britain’s Got Talent’ Contestant And Comedian, Is Our New Hero


Jack Carroll, 14-Year-Old ‘Britain’s Got Talent’ Contestant And Comedian, Is Our New Hero


From The Huffington Post

“Dont worry, I know what you’re thinking: Harry Potter’s had a nasty quidditch accident.”
Fourteen-year-old Jack Carroll opened his audition for “Britain’s Got Talent” with this line, and the act that followed was easily one of the most memorable — and hilarious — of the popular British reality show. The young aspiring comedian has cerebral palsy and faced Simon Cowell and the other judges using a mobility aid on last week’s episode.

But the teen didn’t want his cerebral palsy to be what he called “the elephant in the room.” Instead, he used his short stand-up routine to poke fun at himself and the challenges he faces having a physical disability.

When the teen finished, he received a standing ovation from the audience and judges, and David Walliams called him a “comedy genius.” Watch Jack’s incredible performance in the video above.
“A lot of times in comedy, your weaknesses are your strengths,” he explained backstage, adding that his other strength was “bring[ing] joy to the world.”

We couldn’t agree more. Jack, you rock.

Wednesday, November 14, 2012

Hitesh’s Story: Turning Childhood Challenges into Motivation

Editor’s Note: Hitesh developed cerebral palsy after medical errors led to birth injuries. However, he hasn’t let his diagnosis slow him down! He approaches every challenge head-on to prove to himself and those around him that he can do anything he puts his mind to! Here is his story, in his own words.

By Hitesh Ramchandani

My Birth

On 20th January 1992 at 0144 hours I arrived on the planet called “Earth”. My mother and father were waiting for my arrival excitedly. I was their first child and unfortunately, they were not aware that their excitement was going to be changed into their biggest nightmare. The doctor made some mistakes during the delivery and as a result, I was born with cerebral palsy. I was labeled as disabled. My parents were taken aback, stunned and did not know how to react. Best part was, my mom did not even know what “cerebral palsy” was.

My Parents

My parents were strong and positive people. They knew deep down that God had given them such a child for a reason. They always treated me as a normal person. My father and mother had this strong belief that I would recover, never did they give up on me. The two of them always encouraged and motivated me to give my best in what ever I did. Doctors and teachers recommended to them to put me in a special school but they fought against it and made life for me as normal as any other child. They did not let the doctors’ opinion become their belief. They showered me with love. They spent a lot of time and money on my treatment. Due to that, I reached such a high level that whenever I looked down, I could not even measure how many levels and obstacles I have climbed! I love my parents – it  is such a blessing to have them.  My mom is the greatest woman – she used to take hours each day to make me drink a bottle of milk because she had to take caution that I did not choke due to my weak lungs.

My Childhood

Due to my problem, I had a tough childhood. People always made fun of me, imitated me. Some kids even thought I was an alien. This was due to the fact that during that time, the problem was bad. I could not even stand straight. My walking was like a drunken man walking. I had to use support; otherwise, I would lose balance. My speech was like an alien’s and people could not comprehend what I was saying. My muscles were extremely tight and tensed, especially muscles on my left, and I could not co-ordinate them. When people used to discourage me and make fun of the way I am, as a kid I would go home and cry. I still remember when I was 5 – I went to the park and no kid wanted to play with me because they thought I had a virus and if they touched me, they would be infected too! It makes me laugh when I remember that but during that moment I was so upset that I could not stop crying.  I thought God hated me and He was taking revenge – I was filled with anger and grief. Despite all the negativities, in my heart I always knew I was the best and I lived with a positive attitude. I knew that if I let the world break me, I would be finished before even beginning the race of life.
The positive things in my childhood were I had made amazing friends like Rahul Prem and Shiv Tulsiani. They are both my best buddies till today! They always encouraged me and lifted me up whenever I fell. I am also very lucky to have fantastic cousins like Vicky Vaswani and Karan Ramchandani; they are both like my elder brothers, backing me up whenever I need them. The best thing in my childhood was Natasha Ramchandani – the sweet little angel who entered my family when I was four. My mother gave birth to her on 1st June 1996. The first time I learnt how to walk was when Natasha was two and I was six – she started walking and I was surprised.  If she could walk, then why couldn’t I? Thus, I used that as a challenge and finally, I started walking.

Haig Boys’ Primary School

I entered Haig Boys’ Primary School at the age of 7. Every child is excited about the 1st day of school, but for me, it was the other way round. I was afraid that others would make fun of me and judge me. I was worried if I could cope with the schoolwork or not. I did not know if anyone would be my friend.
My classroom was on the 3rd floor and everybody used the stairs up to class but due to my disability, the school gave me the privilege to use a wheel-chair and a pass to use the lift. I was tempted to use those privileges, but I knew if I took advantage of them, I would never improve and remain where I was. Eventually, I decided to ditch the wheelchair and the lift pass and started to make my way up the stairs, just like everyone else – I did not need any “special” treatments.  The first time when everyone saw me climb up the stairs, despite the difficulty I faced each step, I became the school’s little hero. My principal was honoured to have me in the school and he believed I could be a symbol of inspiration to all the students. Despite my limitations, I always tried my best in my studies too and received passing marks most of the time, with some ‘A’ grades even.
There were times I failed, but my parents taught me that every failure is just another step closer to success. Most people fear failure but the most important thing they fail to understand is that failure brings one closer to success. Instead of regretting and lamenting on your mistakes and failure, learn from them and move on in life.
For example, if you have a gun in your hand and a bottle across from you, and your task is to shoot the bottle down, you just need to follow the steps.  Step one: you get ready, Step 2: you aim, Step 3: fire. If you miss, you won’t be crying right? You must repeat the three steps again and again until you get the bottle down. In fact, failing will just show you how inaccurate your aim was and the actions you need to take to make your next aim more accurate. So why can’t we apply the same concept in life?

Learning to Ride My Bicycle

My classmates would go cycling at the beach and I would be left out because I could not ride a bicycle. Thus, it became my motive to learn how to ride a bicycle. An average kid takes about 1-2 weeks to learn how to ride a cycle. It took me 3 months because of my condition – 91 days to be exact.
I used to practice cycling under my condominium everyday after school. Each day, I would come home with bruises on different parts of my body but still but I never gave up.  I was persistent.  I had to conquer this task!  One day I was practicing near the pool-side. I was so embarrassed that day because I ended up in the pool with my bike and so many people watching. I went home disappointed. I told myself, “never mind I will try harder tomorrow”. I was determined to learn this skill, despite the embarrassing failures that I encountered. On the 91st day, my body finally learned how to balance and I was riding a bicycle – IT  WAS BEAUTIFUL! The feeling was as good as flying.  I will never forget that day!
The moral is, don’t ever lose hope and give up. If I had given up on the 90th day, then I would have never seen the 91st day. Keep going and going, till you make it.

About the Author

Hitesh Ramchandani is now 20 years old and is pursuing his diploma in management studies at the Singapore Institute of Management. He is also taking a Neuro-linguistic programming course outside of school and is  a member of the Toast Master Club Singapore. His desire is to motivate everyone out there to never give up and to fight to the end. Most importantly, he wants to tell others, “don’t ever be discouraged by your problems because the bigger your problem, the bigger your destiny.”

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Tuesday, November 6, 2012

Overcoming All Obstacles: Amanda Henderson Doesn’t Let CP Stop Her

Amanda Henderson’s life hasn’t been easy. But it’s the hardships that have made her stronger.
Henderson was born an orphan with cerebral palsy in Moscow, Russia, in 1997. When her parents Dee and Ken Henderson adopted her, at the age of 22 months, she couldn’t walk or talk. She’s undergone two major reconstructive surgeries, numerous treatments and has endured physical therapy nearly every day since the age of 2. Yet, despite the struggles, Amanda Henderson has flourished.


On the field, she’s a leader for the South Washington County Thunderbolts softball and soccer teams. Off the field, she’s an “A” student, an advocate for valuable programs and all-around sweet girl.
“She is resilient, tenacious and passionate,” Thunderbolts head coach John Culbertson said. “That goes for her schoolwork, Special Olympics, the Thunderbolts, her friends, you name it. I think she wants to prove she can overcome. She definitely knows what she wants and will work her butt off to get it.”

Her list of accomplishments isn’t a short one.
A junior at East Ridge High School, Amanda is currently a co-captain of the South Washington County Thunderbolts adapted soccer team. She’s also been a captain of the Thundberbolts softball team, where she’s a two-time All-Conference player and has earned team MVP and All-State Tournament honors.

Last winter, she not only won a gold and two silvers in the Special Olympics as a swimmer, she also volunteers for the organization on the Youth Activation Committee and helped raise $1,000 for the program by organizing a Polar Bear Plunge fundraiser. She also advocates for Spread the Word to Stop the Word – a national campaign that encourages people to pledge to stop using the word “retard.”

She has 10 varsity letters, was a National Honor Society member as a freshman and is an East Ridge Ambassador. Amanda is not only enrolled in entirely regular-curriculum courses at East Ridge, she also takes Advanced Placement classes and holds a 3.84 grade point average.
In two years she hopes to go to college in order to study Graphic Communication. She also currently has her driver’s permit and will soon obtain her license to drive.
However, what stands out even more than the accolades and accomplishments, is Amanda Henderson’s bright spirit and happy demeanor. She has a peaceful energy and her positivity is contagious.
“She’s just very friendly,” Thunderbolts assistant coach Lindsay Bolin said. “All the kids can go up to her and talk about anything. She’s very open. Even when she is having a bad day, she never shows it. She is always smiling.”

Cerebral palsy (CP) causes physical disability in development, mainly in the realm of body movement. Other conditions can include seizures, epilepsy, speech and language or other communication disorders, along with eating problems, sensory impairments, mental retardation and learning and behavioral disorders, among other issues.

Since birth, Amanda has been effected on her right side with CP. It’s believed when she was born, blood vessels burst effecting her development – some cognitive, but mostly physical.
“When we got to the orphanage in Russia, the doctor asked us if we knew about her legs,” Dee Henderson said. “That was the first we had heard of it. We knew that she would need glasses. That wasn’t a big issue. But, the doctor said she probably had something like Cerebral palsy.”
Though shocked to learn of her disability, Dee and Ken Henderson didn’t waver and brought baby Amanda back to Minnesota, where she’s lived ever since.
“Even before we had a chance to meet Amanda, we fell in love with her when we saw her on a videotape,” Dee Henderson said. “I knew from the moment I saw her – her eyes and her smile – she was the only child I wanted to adopt.”

Learning to function physically has been a daily struggle for the Amanda. Throughout her life, amid the numerous surgeries, casts and procedures, the Hendersons literally had to teach Amanda how to crawl and walk and train her to be ambidextrous with both her feet and her hands.
“For the most part, with a lot of physical therapy and macaroni and cheese and French fries, she’s a happy, healthy young lady,” Dee Henderson said. “Most people don’t even know she has Cerebral palsy.”

Though she didn’t want to try it at first, Amanda has played softball for the Thunderbolts since seventh grade and soccer since eighth grade.
“I think it helps me stay in shape and not be a couch potato,” Amanda said. “It helps me with my Cerebral palsy, because it keeps me practicing with my right leg. I’ve seen improvement with myself from last year. I’m actually even using my right leg more than my left now.”
This fall, Amanda’s teammates elected her as one of two co-captains of the Thunderbolts soccer team. She said she wasn’t expecting it “at all.”
“The other players sometimes come to me for advice,” Amanda said. “Since I am one of the better players, I guess, I know what to do and can help them to improve. That gives me a sense of accomplishment that I can actually help out.”

Amanda said she likes both softball and soccer for different reasons. She said softball is more mental and soccer is more physical.
“I think the most important thing about adapted sports is that it’s given her the confidence to believe that she can compete in sports, that she can be a leader and she can participate in something she may not have thought she could,” Dee Henderson said. “So often these kids have struggles in life that not everyone else has. To see the joy this brings them, when they wouldn’t necessarily have that is just wonderful.”

The Minnesota Adapted Athletics Association first formed in 1984. Its mission is to “provide youth with disabilities the same opportunity as other students to enjoy the benefits of a quality high school sports program.” In 1992 the MAAA was accepted into the Minnesota State High School League. Minnesota is the only state in the country with a high school sports league for kids with disabilities.
“The state of Minnesota deserves a lot of credit, because a lot of states don’t have these kinds of programs,” Ken Henderson said. “For a lot of these kids, it’s not all about winning, it’s about competing. They like to win, don’t get me wrong, but those kids are having fun win or lose. Amanda enjoys being successful at it and being with these kids. There’s a lot of camaraderie between these kids. There’s a community and a lot of support.”

Culbertson said he witnessed a progression in Amanda before last year.
“When she took over the pitching job in softball, we kind of saw a blossoming and a growth in terms of physical ability, confidence and the other kids looking up to her,” he said. “She’s one of those kids you love to coach, because she will look you in the eye, listen to you and go out and do it.
“I don’t have kids, but if I did, I’d love to have a kid like that.”

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Tuesday, October 9, 2012

Student with Cerebral Palsy Blogs for Teens

October 4, 2012
By David Whiting


Some say forget weaknesses, focus on your strengths. But there are those who turn weakness into inspirational power.
If you’re young and have cerebral palsy, chances are you’ve heard of Katy Fetters. If you haven’t, here’s your chance to meet Fetters in her salad days. I suspect we’ll be hearing more from this college sophomore.
Fetters, now 20, launched her teen cerebral palsy blog three years ago, just won a $19,000 scholarship for an essay about her condition and this summer was profiled on national television.
When many her age aren’t sure what they’ll do with their lives, Fetters already is changing lives.
The spark? Insecurity.
• •
Fetters and her twin sister, Sara, were born at 27 weeks. They each weighed about 2 pounds.
Sara was OK. But doctors said Katy would never walk, never talk.
I meet Fetters at her school, Soka University, built on a bluff in Aliso Viejo. Standing before glistening pools, there’s a blonde in aviator sunglasses who looks as if she walked out of the MTV show “Laguna Beach.”
I’ve read Fetter’s blog. Insecure? Come on.
Fetters walks toward me. She is not fast, tilts up and down a little, sort of drags her left leg.
For a young woman raised in a culture where appearance is paramount, it’s a tough way to make an entrance.
Regardless, Fetters walks with purpose, determination and an emerging confidence.
We walk around campus, climb stairs, sit – and talk.
Those baby doctors had no idea whom they were dealing with.
• • •
Cerebral palsy is a non-progressive disorder caused by damaged motor control centers. It can occur during pregnancy and through age 3. Premature infants are especially vulnerable.
There are many forms, many stages. Fetters calls her condition mild. She explains that her brain has a hard time, sometimes an impossible time, telling the left side of her body what to do.
Her left hand works, but not nearly as well as her right. He left leg? Not so much.
But that has never stopped Fetters from doing anything. Except surfing.
Fetters grew up in Huntington Beach with a younger sister, an older brother and Sara. For a kid with CP, as Fetters calls cerebral palsy, she says hers was the perfect family.
Big brother offered a buffer when he was a high school senior and Fetters was a freshman. She had Sara and other friends as companions. And mom and dad understood the depth of human potential, of tapping into inner strength.
Her mother, Carolyn, was a rower while at UCLA where she happened to study CP. Her father, Paul, moved from Michigan to California to become a bodybuilder and is founder of the Training Spot gyms in Huntington Beach.
Growing up wasn’t about can’t. It was about can.
• • •
When Fetters was a toddler, she didn’t toddle. She crawled, combat style, arms pumping, legs following. She mastered walking when she was 3.
When friends started to skateboard, Fetters flopped on her belly and turned her skateboard into a sled.
She didn’t think much of her switch-ups. She just wanted to play. It wasn’t until the twins were 5 and Sara started riding a bicycle that Fetters grasped she was different. It took her three more years to ride a bike.
“Looking back,” Fetters laughs, “I was a nut.” A tough nut.
She joined AYSO soccer when she was 8 and didn’t stop until last year. Her secret? “Not to outrun but to outsmart.”
But on the field she mostly forgot about CP – just as her teammates did. She sometimes wondered, “Why am I so slow?”
Still, there were stark reminders. Growing up, she was supposed to do physical therapy an hour a day. A series of casts stretched her ankle. Doctors operated on her leg to lengthen a tendon. She had to wear a brace on her leg every night – she still does – and during the day for months at a time.
But her teen years proved even more challenging.
• • •
In middle school, Fetters went out for cross country and managed to keep up with the middle of the pack.
Still, one kid said she had a fake leg. Another said, “I heard you can’t run.”
Fetters used the comments as fuel, posting her best mile ever.
Understand, that mile came with suffering. “I hate running,” Fetters confesses. “It’s the hardest thing in the world.”
High school, with far more students and a much larger campus, tested her limits. “I fall a lot in general. I trip over my own feet,” she says.
One day, she took a dive in front of a bunch of upperclassmen, books and knapsack splayed. No one teased her, but she felt humiliated, defeated.
She went home and cried, withdrew. Then in the summer of 2009, before her junior year, she regrouped.
Fetters cut her waist-length hair to a bob, took ownership of what she now calls a “disability” with her fingers marking the quotes and – with the help of Stanford University student Greg Greiner – started teencerebralpalsy.com.
The blog was an instant hit. Today, Fetters gets 5,000 page views a week and hears from people as far away as Africa and Australia.
One teen: “Hi, I’m 16 and have CP (I’m in a wheelchair at the moment). I have been having a really hard time at school because I just don’t fit in.”
Fetters’ reply: “I have found that it is easier to connect with people if you are more open with them about how CP affects you.”
Fetters shakes her head, “It’s crazy to realize how much power there is in words. I had no idea I was considered inspirational.”
But it wasn’t just others that Fetters was inspiring.
• • •
Being human, Fetters has her down times. Watching herself on Fox’s show “Live Life and Win” was the best and worst of times.
“Who ever would have thought I’d be on TV,” she says, still marveling at the experience. At the same time, she hated watching herself. “I didn’t realize I walked like that. That was really overwhelming.”
But Fetters shakes off the negative and focuses on the positive, saying the show helped others find her blog, a blog she credits for a huge shift in her confidence.
For her next project, Fetters is considering writing a book about what she’s learned to help students who struggle in high school.
It could be a book for all teens.

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For more information on Cerebral Palsy please visit:
http://www.cpfamilynetwork.org

Friday, October 5, 2012

Tyler Perry Comes to the Rescue for Woman with Cerebral Palsy


October 5, 2012
View original article

A Georgia woman with cerebral palsy is getting some help from a celebrity filmmaker after he saw a Channel 2 Action News report about her van being stolen.

Atlanta-based media mogul Tyler Perry called Channel 2 and said he wanted to give Alicia Day a brand new van, just minutes after seeing her story air Monday afternoon.

The family of the 24-year-old said someone stole her specially equipped van out of their driveway sometime Sunday between 7 p.m. and 9 p.m.
Day, who's in a wheelchair, had no idea how she would get around. Despite her disability, she told Channel 2's Diana Davis she prides herself on trying to be independent, working part-time as a greeter at Home Depot. Her mother, Hannelore Day, also relies on the $60,000-van to take Day to work and to doctor appointments.  But now transportation is no longer a concern thanks to Perry, Day said.
“My mouth just dropped to the floor when I heard his voice,” Day said about her reaction to Perry’s call. Her father, who answered the phone couldn’t believe it was Perry.
He said, "Excuse me, who do you want to talk to? Who is this now?,' Day’s mother said.
Her mother said she didn’t realize the report about her stolen van would make such a difference.
After seeing the report, the Home Depot, is also pitching in. Day’s co-worker donated $5,000 to help with her medical expenses. She’ll meet the company president Friday.

As for the missing 2000 Chrysler Town and Country van, it has DeKalb County handicapped plates with license No. DP0229.

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For more information on Cerebral Palsy please visit:
http://www.cpfamilynetwork.org

Student with Cerebral Palsy Blogs for Teens


Student with Cerebral Palsy Blogs for Teens

October 4, 2012
By David Whiting

Some say forget weaknesses, focus on your strengths. But there are those who turn weakness into inspirational power.
If you’re young and have cerebral palsy, chances are you’ve heard of Katy Fetters. If you haven’t, here’s your chance to meet Fetters in her salad days. I suspect we’ll be hearing more from this college sophomore.
Fetters, now 20, launched her teen cerebral palsy blog three years ago, just won a $19,000 scholarship for an essay about her condition and this summer was profiled on national television.
When many her age aren’t sure what they’ll do with their lives, Fetters already is changing lives.
The spark? Insecurity.
• •
Fetters and her twin sister, Sara, were born at 27 weeks. They each weighed about 2 pounds.
Sara was OK. But doctors said Katy would never walk, never talk.
I meet Fetters at her school, Soka University, built on a bluff in Aliso Viejo. Standing before glistening pools, there’s a blonde in aviator sunglasses who looks as if she walked out of the MTV show “Laguna Beach.”
I’ve read Fetter’s blog. Insecure? Come on.
Fetters walks toward me. She is not fast, tilts up and down a little, sort of drags her left leg.
For a young woman raised in a culture where appearance is paramount, it’s a tough way to make an entrance.
Regardless, Fetters walks with purpose, determination and an emerging confidence.
We walk around campus, climb stairs, sit – and talk.
Those baby doctors had no idea whom they were dealing with.
• • •
Cerebral palsy is a non-progressive disorder caused by damaged motor control centers. It can occur during pregnancy and through age 3. Premature infants are especially vulnerable.
There are many forms, many stages. Fetters calls her condition mild. She explains that her brain has a hard time, sometimes an impossible time, telling the left side of her body what to do.
Her left hand works, but not nearly as well as her right. He left leg? Not so much.
But that has never stopped Fetters from doing anything. Except surfing.
Fetters grew up in Huntington Beach with a younger sister, an older brother and Sara. For a kid with CP, as Fetters calls cerebral palsy, she says hers was the perfect family.
Big brother offered a buffer when he was a high school senior and Fetters was a freshman. She had Sara and other friends as companions. And mom and dad understood the depth of human potential, of tapping into inner strength.
Her mother, Carolyn, was a rower while at UCLA where she happened to study CP. Her father, Paul, moved from Michigan to California to become a bodybuilder and is founder of the Training Spot gyms in Huntington Beach.
Growing up wasn’t about can’t. It was about can.
• • •
When Fetters was a toddler, she didn’t toddle. She crawled, combat style, arms pumping, legs following. She mastered walking when she was 3.
When friends started to skateboard, Fetters flopped on her belly and turned her skateboard into a sled.
She didn’t think much of her switch-ups. She just wanted to play. It wasn’t until the twins were 5 and Sara started riding a bicycle that Fetters grasped she was different. It took her three more years to ride a bike.
“Looking back,” Fetters laughs, “I was a nut.” A tough nut.
She joined AYSO soccer when she was 8 and didn’t stop until last year. Her secret? “Not to outrun but to outsmart.”
But on the field she mostly forgot about CP – just as her teammates did. She sometimes wondered, “Why am I so slow?”
Still, there were stark reminders. Growing up, she was supposed to do physical therapy an hour a day. A series of casts stretched her ankle. Doctors operated on her leg to lengthen a tendon. She had to wear a brace on her leg every night – she still does – and during the day for months at a time.
But her teen years proved even more challenging.
• • •
In middle school, Fetters went out for cross country and managed to keep up with the middle of the pack.
Still, one kid said she had a fake leg. Another said, “I heard you can’t run.”
Fetters used the comments as fuel, posting her best mile ever.
Understand, that mile came with suffering. “I hate running,” Fetters confesses. “It’s the hardest thing in the world.”
High school, with far more students and a much larger campus, tested her limits. “I fall a lot in general. I trip over my own feet,” she says.
One day, she took a dive in front of a bunch of upperclassmen, books and knapsack splayed. No one teased her, but she felt humiliated, defeated.
She went home and cried, withdrew. Then in the summer of 2009, before her junior year, she regrouped.
Fetters cut her waist-length hair to a bob, took ownership of what she now calls a “disability” with her fingers marking the quotes and – with the help of Stanford University student Greg Greiner – started teencerebralpalsy.com.
The blog was an instant hit. Today, Fetters gets 5,000 page views a week and hears from people as far away as Africa and Australia.
One teen: “Hi, I’m 16 and have CP (I’m in a wheelchair at the moment). I have been having a really hard time at school because I just don’t fit in.”
Fetters’ reply: “I have found that it is easier to connect with people if you are more open with them about how CP affects you.”
Fetters shakes her head, “It’s crazy to realize how much power there is in words. I had no idea I was considered inspirational.”
But it wasn’t just others that Fetters was inspiring.
• • •
Being human, Fetters has her down times. Watching herself on Fox’s show “Live Life and Win” was the best and worst of times.
“Who ever would have thought I’d be on TV,” she says, still marveling at the experience. At the same time, she hated watching herself. “I didn’t realize I walked like that. That was really overwhelming.”
But Fetters shakes off the negative and focuses on the positive, saying the show helped others find her blog, a blog she credits for a huge shift in her confidence.
For her next project, Fetters is considering writing a book about what she’s learned to help students who struggle in high school.
It could be a book for all teens.

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Thursday, October 4, 2012

Proving the Doctors Wrong - Growing Up with Cerebral Palsy


Proving the Doctors Wrong

By Ben Jackson
My name is Benjamin David Cummings-Jackson and I was born with Hemiplegic Cerebral Palsy. I was born on January 20th 1993 in Brooklyn, New York at Interfaith Hospital. After birth I was immediately rushed to neonatal care and spent ten days in the hospital. Doctors told my mom everything I would never be able to do, such as walking. They also expressed that my entire life would be confined to a wheelchair. They said I wouldn’t be able to attend school, have a social life and pretty much be limited due to my cerebral palsy. Doctors even suggested that mom just let me die, because I would be a burden and too much to deal with. Fortunately, my mom put it in God’s hands and took me home.

Exploring My Strengths Through Sports

Growing up with CP was no easy task; I took my first steps when I was 18 months old. As a kid, I was always very energetic and passionate about sports. The first sport I remember being heavily involved in was basketball. Although basketball wasn’t easy for me, I was eager to learn and adapted a strong work ethic that I still carry with me to this day. Sports taught discipline which helped me in school, allowing me to excel in all subjects. My favorite subjects were math and history. Although I was determined, school was tough because I was the only disabled kid in the entire school and I didn’t know what it was at the time but I just felt different.
In seventh grade my family moved to Pennsylvania and I attended Clear Run Intermediate. At first, I was just the new kid so everyone was kind of cautious when approaching me, but as the weeks went on everyone was very accepting. After a year went by I moved up to eighth grade. I now went to Pocono Mountain West Junior High School. The Junior High school was different; there were a lot more kids which was a challenge for me because I was pretty much the only kid with a physical disability. One day on my way out of the building to catch the bus to go home, I saw a poster that said “Come be a part of the West Wrestling Team.” I took a sign-up sheet home and showed my mom and dad.
My parents have always been very supportive of me, so when the idea of wrestling came up they encouraged me to go for it. Wrestling in junior high was the biggest challenge I have ever taken on, because it was the most physical and I loved it. The first two years of wrestling involved intense workout both in the weight room and on the mat. But it was all worth it, because in my second year I won my first wrestling match by pin. Everyone was so happy for me. That’s when I discovered that with hard work anything is possible.

An Award-Winning Senior Year

Entering high school I had a new reputation as the heart of the wrestling team. High school was great. I kept my grades high, allowing me to achieve honor roll multiple times. Since academically I had my standards set, I was able to focus on wrestling when I was not studying. Every afternoon at 2:45pm, I would go to wrestling practice for two hours, then go home and do homework before bed. As my high school years went by, both my physical and mental appearance grew stronger. Senior year I was determined to make my last year my greatest achievement yet.
The first wrestling match of senior year I was awarded “The Chris Hernandez M.V.P Award.” Chris Hernandez was a former wrestler at Pocono Mountain West whom was tragically killed, so when I won his award it meant the world to me. I would go on to win six more matches that year, which were my most so my goal was achieved. At the annual wrestling banquet, I was given the honor of getting my own award named after me, “The Ben Jackson Courage Award.” It brought me to tears. Every year, my award will be handed out to a new wrestler. As the year went on I was also given other awards including the “Ray A. Kroc Youth Achievement Award” followed by “The Donald Cramer Memorial Award,” which was given to me at graduation.

Continuing to Chase After My Dreams

Today, I attend Northampton Community College and this will be my second year. College has presented me with many challenges, but I never let anything defeat me and I don’t plan on starting now. My first year I was teased and laughed at when walking down the halls. It did hurt my feelings, but my goal was never to find satisfaction in others. My goal was to go above and beyond in my academics and I did exactly that by making the Dean’s List. My life has been filled with challenges, but every challenge has been followed by a triumph of success.

About the Author

Benjamin David Cummings-Jackson lives in Pennsylvania, where he continues to exceed all doctors’ expectations. He is excelling in college and hopes to inspire others to achieve their dreams.

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Monday, October 1, 2012

Ironman Qualifier Bonner Paddock Pushes the Limits of Cerebral Palsy


Ironman Qualifier Bonner Paddock Pushes the Limits of Cerebral Palsy


October 1, 2012
By Marcia C. Smith
From The Orange County Register
The slight limp is there when he walks, the left toe of his leather shoe scratching the pavement, his right heel dragging. This crooked, unsteady gait is a lifelong reminder of the mild cerebral palsy that Bonner Paddock can’t hide.
He has had 37 years to adapt to the complications of the brain and nervous-system disorder caused at birth when his umbilical cord nearly choked him to death.
His lower legs have always been gimpy, ankles shot and toes cramped and curled. His equilibrium comes and goes like light from a bulb with a short, forcing him to correct his balance continually by sighting his surroundings and knowing up from down, floor from ceiling and base from summit.
He has tripped, stumbled and fallen all his life. He can’t count all the times he skinned his elbows and knees. He broke his arm — twice — as a child, trying to catch himself.
The best part of Paddock’s story is that he always, stubbornly, gets back up — often with greater determination and a bigger chip on his shoulders despite “the hitch in his giddy-up,” he says.
Paddock, who grew up in Mission Viejo and lives in Newport Coast, earned a soccer scholarship to Concordia, using the same quick reflexes he uses to correct his every motion to play goalie.
He ran the OC Marathon in 2007. He climbed Mount Whitney for practice and then Mount Kilimanjaro in 2008, becoming the first person with cerebral palsy to summit the world’s largest free-standing peak at 19,340 feet. Unassisted.
The next impossible — or “crazy,” depending on whom you ask — task on Paddock’s to-do list is the Ironman World Championships, the triathlon billed as the world’s toughest one-day sporting event, on Oct. 13 in Kailua-Kona, Hawaii.
He is entering the race — a 2.4-mile swim, a 112-mile bike ride, a marathon-length 26.2-mile run — not to win but to finish and to complete it for everyone who has never been able to take a step.
His greater goal is to raise $1 million for his 3-year-old OM (One Man, One Mission) Foundation, which develops early learning centers to help children with disabilities and funds organizations including United Cerebral Palsy of Orange County and Light in Africa.
“With proper training and my belief in myself,” Paddock says, “I believe I can do it. I’m ready, antsy, like a wild horse just wanting to kick through the stable door.”
He will make us all believers.

Drive to Succeed

Paddock, a San Diego State graduate with a degree in business management, has a career. A former senior director of corporate sponsorships for Honda Center and the Ducks, he has been the senior vice president of marketing for Young’s Market Company, a Tustin-based distributor of fine wines and spirits, since 2010.
But that is just work. It pays the bills, affords him a few luxuries. It’s not what has driven him through life or gets him up at first light for the past two years to swim 4,000 yards in the pounding, 65-degree Pacific Ocean or pedal a stationary bike for four hours in his garage to train for the rigorous Ironman.
His motivation runs much deeper, diving back to the early childhood when he was the slow kid who tripped over his own feet at the playground and was mercilessly teased by his classmates and two older brothers because of a clumsiness he couldn’t control.
He was a frustrated child, sometimes so angry after falls that his teachers complained about his tantrums. His brothers, Mike McConnell and Matt Rinn, never cut him slack and let him stay on the sidelines.
Paddock always figured out some way to be valuable to a team. In Little League, he became a switch-hitter; in youth basketball, a savvy 3-point shooter; and in soccer, the goalie because all the other kids wanted to score.
“I’ve got to give Bonner credit,” said McConnell, an All-American swimmer at Arcadia High. “He never gave up no matter what the doctors said.”
Growing up, seven doctors gave Paddock seven different diagnoses, each trying to fix his legs with walking therapies, braces, flat-soled saddleshoes and lower-body casts.
On his 11th birthday, one doctor told his family that he had degenerative syringomyelia, that he’d be in a wheelchair by age 15 and dead by 20. A few months later, UC Irvine neurologist Arnold Starr correctly diagnosed his CP, and “I felt like I got my life back,” Paddock recalled.
Until his 30s, Paddock did everything he could to avoid association with his disability. He hid it when he could. He used his quick, self-effacing humor to get him out of the occasional embarrassing tumble.
But during the 2004-05 NHL lockout, when Ducks owners Henry and Susan Samueli urged staffers to take up philanthropy, Paddock made a call to the Orange County chapter of United Cerebral Palsy and arranged to visit children at a therapy center.
Some sat in wheelchairs, unable to walk. Some mumbled noises, unable to talk. Even in their condition, they smiled, laughed and reached to touch Paddock’s hand.
They touched his heart.
“Why me?” wondered Paddock, realizing the miracle of his limited motion that he had before then considered his curse.
So he ran the 2006 OC Half Marathon cold to raise money for UCP-OC. Near the finish, he met Steven Robert, a father who picked his 6-year-old son, Jake, out of a wheelchair and carried him across the line.
“Jake had CP, and his father ran because Jake couldn’t,” Paddock said. “That night of the marathon, Jake died.”
With “Jakey Bear” written across the bottoms of his sneakers, Paddock ran the full 2007 OC Marathon and raised $30,000 for UCP-OC.
With a beaded necklace bearing Circle of Life pendant symbolizing all the children who’ve inspired him, Paddock climbed Mount Kilimanjaro and contributed all $260,000 in donations to his OM Foundation charities.
His harrowing and emotional journey was beautifully chronicled in the documentary, “Beyond Limits,” narrated by late actor Michael Clarke Duncan.
Struggling and spent, Paddock found strength in remembering the children who had sent him good-luck letters and drawn him Crayola pictures. For them, he staggered and reached Uhuru Peak.
“It took my body two years to recover from Kili,” Paddock said. “The joke after Kili was ‘What are you going to do next?’ I knew I had one more big thing I wanted to do.”

Another Quest

It was around January 2011 when Paddock began researching the Ironman triathlon and contacted Greg Welch, Oakley’s sports marketing director and the 1994 Ironman World Champion.
“Will you train me?” Paddock asked in an email. “There’s no way I’m doing this without you. I need all your expertise.”
After meeting Paddock and watching “Beyond Limits”, the Australian Welch said, “Absolutely, mate!”
This wasn’t an easy decision for Welch, who understands that the Ironman is not just about the staggering distances.
“It’s about the elements — 90-degree heat, 90 percent humidity and tradewinds from 15 to 45 knots, hills and climbs in the terrain — all on a body with CP,” Welch said. “I know Bonner is mentally strong but this is still going to be very, very tough. This is going to be about survival.”
Welch contacted his sponsors to get Paddock equipment, including TYR “Freak of Nature” swimsuits and Cannondale Synapse road cycles. He designed a progressive, 20-month, five-day-a-week training plan to build Paddock’s confidence and endurance.
Paddock got permission from his employer to train weekday mornings. He met with Young’s Market board chairman Vern Underwood, who was so impressed with Paddock’s commitment that his company donated $250,000 and offered to match every employee’s contribution to OMF (1man1mission.org).
Paddock dedicated himself to daily training: four-hour sessions on a stationary bike in his garage and in silence; 60- and 90-minute swims at heavy and slower paces in the UC Irvine pool and the ocean near Crystal Cove; long hours of uphill walks and downhill jogs; 4-, 6- and 8-hour cycling rides along the Santa Ana River Trail; and weightlifting.
Welch, worried about Paddock’s balance on two wheels had Paddock training on a stationary bike for six months. He had Paddock meet with a swim coach to improve his stroke because CP made his legs like a deadweight rudder in the water.
Swim, bike and run filled Paddock’s calendar to prepare him for the 2.4-mile swim segment that begins and ends at Kailua Pier, the 112-mile bike race loop on the Queen Ka’ahumanu highway along the Kona Coast through scorching lava fields to Kohala Coast and the Hawi village; and the marathon course that travels the bike route through Kailua-Kona and finishes along Ali’i Drive.
Paddock, who will wear Bib No. 1421, is entered in the general competition, not the physically challenged division. For extra stability, he will ride a 10-pound bicycle, which is a little heavier than a triathlon bike, and run in thicker soled, more supportive Asics Gel PS Trainer 17s.

“Bring it on,” Paddock said, not wanting assistance during the transitions or special allowances for his condition.
“I wouldn’t have trained him unless I knew he could do it,” Welch said. “He has prepared himself, doing almost all of it on his own.
McConnell, Paddock’s brother, set the pace during many swimming sessions and accompanied him when Paddock completed the Ironman 70.3 Hawaii Half Ironman with overall time of 7 hours, 52 minutes to qualify for the world championships.
“It’s crazy but it’s Bonner,” said McConnell, who attended a send-off rally for Paddock on Wednesday at the UCP-OC headquarters at Irvine.
Paddock’s most loyal fans were there holding up a banner they painted with the message, “Go Bonner! You can do it!!” surrounded by dozens of their handprints.
Red-haired Ashley Arambula, 9, of Laguna Hills, who has cerebral palsy, looked up to Paddock from her wheelchair and asked, “Can I be your partner?”
“You already are,” Paddock, kneeling down, told her.
Ashley clapped. Her Ironman event, she told her mother, Monica, “is to walk one day.”
His eyes glistening with the beginning of tears, Paddock limped to the podium and promised the crowd, “I will do this.”
For everyone.

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Wednesday, September 12, 2012

The Triumphs and Challenges of My Teenage Years

The Triumphs and Challenges of My Teenage Years

By Crystal McClure
Writing for the CP Family Network
In my last blog, I wrote about what it was like growing up with cerebral palsy. That story primarily concentrated on my elementary school years. As any adult knows, the middle school and high school years can often be the toughest, especially for children with disabilities. I decided I wanted to share my experiences and the lessons I’ve learned in order to encourage others to persevere through the hurdles they face as a teenager.

Middle School

The transition from elementary to middle school was not as difficult as I had expected it to be. I was going to a brand new school just like everyone else. I reconnected with a few people from my pre-school days at Spring Creek who also have disabilities and use wheelchairs, walkers etc. It was a comfort knowing I “wasn’t the only one.” I became really good friends with Alex Kanavos in the sixth grade. He also has Cerebral Palsy and uses a wheelchair. We still talk to this day.

Near the end of my sixth grade year, I went back to Shriners Hospital in Kentucky, where I had 2 weeks of physical and occupational therapy. I learned how to dress myself, transfer to and from bed, and also how to go to the restroom on my own with someone just there to spot me. This was a big accomplishment in my life and still remains so. It was freeing knowing that I did not have to ask for help to get dressed and that I could do things on my own like any other 12 year old.

However, bathroom breaks proved to be one of my troubling times in middle school. It seemed as though I always had to go at the wrong time. The aides were eating lunch and would ask that I return at a later time, or my teacher didn’t like the time I chose because it was near the end of class. I was allowed to leave class 5 minutes before the bell rang for class change. Sometimes, this still wasn’t enough time to go to the bathroom and get to class in time to get settled. Why? I was not able to use the bathrooms in our wings (each grade had their own hallway). I had to go to the Multi-Handicap room, which was in the middle of the school, to use the restroom. Going into class late was not only an embarrassment for me, but also a disruption to the class as a whole.
Overall, my middle school experience was great with the exception of the bathroom issues. I am grateful that I was able to take those two weeks at Shriners to become more independent. Not only did I learn to do a lot on my own, but it helped shape me into a strong-willed person and gave me high confidence and self-esteem.

High School

High school, on the other hand, proved to be a bit more challenging. I still attended school with many of the same people from both elementary and middle school, but my freshman year we also combined with a school from Chattanooga. I still had the same friends and made many acquaintances along the way. I didn’t have the bathroom issues like I did in middle school, thank goodness.
My main issue in high school was other people. I was bullied. Nothing severe but nonetheless, it is still what I consider bullying. I was trying to go through the cafeteria one day to get to the lunch line and there were students in my way. I said, “Excuse me” three times and no one moved. I then proceeded and blew the horn on my power chair to let students know I needed through. When I did this, a girl got in my face and said some profane words along with telling me I did not have the right to use my horn. There were a couple other instances my Freshman and Sophomore years, but they were addressed by teachers and staff.
One of the most sobering moments of my high school years was not being able to attend my Junior Prom. It was set on a local riverboat which was not handicap accessible. My mother and several teachers I had grown to know well made sure that my Senior Prom was accessible for me. I had my own kind of Cinderella story that night, as in I was home when the clock chimed 12!
My Senior year in itself was probably the one I enjoyed most, but not without some flaws. During the last half of my Senior year I had enough credits to be able to only attend school for half the day. I had no way home in the middle of the day so I chose to attend half-day vocational school. I chose to be in the Graphic Design class there, which ended up being somewhat of a nightmare. I was not able to use the machines to learn anything. Because of this, the teacher just sat me in front of a computer and asked that I write a book about myself. I did this for a while, then quickly realized it wasn’t what I went there for and in essence I was being discriminated against. I addressed this issue with the staff of the school and  they placed me in Cosmetology where I finished the rest of the year.
Graduation day, May 17, 2002, was one of my proudest moments. I am the first person in my family on my Father’s side to receive a high school diploma.

Lessons Learned

Even though there were some rough patches during those seven years, given the opportunity I wouldn’t change them. I learned how to become my own person, and how to persevere and push on through tough times. For this, I am forever grateful.

About the Author

Crystal McClure lives in Tennessee. She owns her own home and holds an Associates Degree in Office Administration. She is pictured with her boyfriend, Mike.

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Wednesday, September 5, 2012

A Note from a Special Kid to Special Parents

A Note from a Special Kid to Special Parents

By Sally Brown
Raising a child with cerebral palsy is full of mixed emotions. Both parents and child can at times feel confused, frustrated, joyous and grateful. This note from a special kid to special parents is intended to give both sides permission to express all of their emotions and embrace the life they’ve been given.

You are the perfect parents for me.

I know that you did not sign up for a kid like me. I also know that you sometimes think you cannot face what it takes to raise me. I want you to know that this is not true. I believe that I chose you. Whatever you need to learn, you will learn. The strength you think you need will come from somewhere. The people you need to meet will show up when you need them.

This is the perfect life for me.

My life is a very special one. I believe that I will impact the world in a unique and wonderful way. Remember this when your heart is breaking because you want a path for me that is so much easier than this one.

I need you to find your own spiritual path.

The road we are on is not an easy one. To make it successfully, you will need all the spiritual strength you can muster for the tough days. You will need to help me when my spiritual strength is out the window. Often, you will see signs of my determination and be amazed by it. That is not enough. You will have to find your own answers. I am depending on you for it.

However you feel about me is OK.

Sometimes you will feel tired and helpless and like you cannot care for me one more day. Sometimes you will be mad because there seems to be no escaping me. That is OK. There is no way you could take care of me without having those days.
Sometimes you may watch people look at me and be a bit embarrassed that I am not doing better. That does not make you a bad parent. It just means you are human.
Know that when you have lots of these days in a row, it is time for you to get somebody else to take care of me, just long enough for you to regenerate yourself. It is always important that you let people help you. I am depending on you to do whatever you need to do to take care of yourself.

However I feel about my disability is OK.

Some days you will be amazed at what a happy contented person I am and you will wonder how in the world I do it. Treasure those days. Some days I will be discouraged. Some days I will be mad. Some days I will even feel really sorry for myself. Don’t panic. I will come back around again. If you let me express these unattractive feelings, they have much less power. Even typical folks feel sorry for themselves sometimes.

Let me try things I want to try, even if you are sure I will fail.

I know that you want to protect me. I am your child; that’s your job. But I need you to understand that my survival is always going to depend on my determination. Part of my own process is to figure out what my limitations really are. Sometimes I may want to try to do things that seem impossible to you. Please encourage me anyway. It is the willingness to try that is important. Success is a bonus. Know that if I fail, I will get over it. If you make me scared to try, I am really doomed.

Don’t worry about my whole life today.

Sometimes you will drive yourself crazy worrying about how my life will turn out. You will lose hours of sleep trying to figure out how I will survive in the world after you are gone. This is not helpful to me. Just help me stay in today. The more you can focus on whatever we have to face today, the more you will be helping me develop the skills I will need when it is time for me to get along without you.

Sometimes people will be mean to me or scared of me. I expect you to stick up
for me, but I do not expect you to change the world.

There are lots of really wonderful people in the world. You and I will meet many of them. There are also some real jerks who will be afraid of me or not treat me fairly. They will assume things about me that are not true. They may even assume things about you that are not true. You may want to start a fight. I may want to do the same. I expect you to speak up for me when you can. But I also need for you to be able to let it go. It will not help me if you are mad and defensive all the time. If you are, there are people who may not want to help me just because it is too hard for them to deal with you.

Finding good doctors and professionals is important, but you know me better
than they do.

I expect you to trust your own instincts about what is good for me. The doctors and therapists that work with me are going to be very important in the quality of my life. Some of them will be amazing and some of them will be pretty crazy. Often, it will be up to you to decide which is which. Listen to them and know that what they say is important, but also remember that you know me best. If something they suggest does not feel right to you, listen to that small voice and speak up.

I really hope we can laugh.

I believe that laughing was probably God’s best idea. It will be the one thing that can bring joy to our lives the quickest. If I get stuck in a mud puddle, it is probably funny. If you are lifting me and we both fall on the floor in a heap, that is probably funny too. A good joke is worth taking the time to laugh at. Help me not get so caught up in the serious problems we face every day that we forget to laugh.

About the Author

Sally Brown is a business owner and author with cerebral palsy. She owns Creative Crutches, a supplier for Bfunkymobility, LLC. Brown has been a story teller and comedian. With love and humor she shares the truth about her life as a person with a disability.

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Tuesday, August 28, 2012

The Inspiring Story of Matt Woodrum, an 11 year-old with Cerebral Palsy

The Inspiring Story of Matt Woodrum, an 11 year-old with Cerebral Palsy

The following is the definition of courage and inspiration. When 11 year old Matt Woodrum, who has cerebral palsy, was struggling through his 400 meter race at school, his physical education teacher walked over to check on the 5th grader and provide some encouragement. Then an amazing thing happened.  As Matt continued to run, more and more of his school mates converged and congregated alongside him, running and cheering him on until he completed the race. Heroic!
It was his fourth race of the day, and one he didn’t have to run. Only a handful of students opted to give it a try, said Anne Curran, Woodrum’s mother. She said her son doesn’t exclude himself from anything, playing football and baseball with friends and his two brothers.
“He pushes through everything. He pushes through the pain, and he pushes through however long it may take to complete a task,” she said. “He wants to go big or go home.”
The sometimes shaky footage shows Woodrum beginning the race on a steady pace with his classmates, though he quickly lags. As several students pass him on their second lap around the grassy course, Blaine walks over to make sure Woodrum is ok.
“The kids will tell you that Matt never gives up on anything that he sets out to do,” said Blaine, who has been Woodrum’s teacher since kindergarten. “They knew he would cross that finish line, and they wanted to be a part of that.”

Here is the video of Matt!
For more information on Cerebral Palsy please visit:




Wednesday, August 15, 2012

A Letter to My 10-Year-Old Self

A Letter to My 10-Year-Old Self

By Chris Windley
Writing for CP Family Network
Chris Windley is well-acquainted with the challenges facing children with cerebral palsy. As a child growing up with a disability, he experienced bullying, feelings of isolation and self-doubt. Now a thriving 27-year-old, Chris reflects back on his life and shares touching words of wisdom with his 10-year-old self.

Dear 10-year-old Chris,
Hi. I’m you 17 years from now. You’re in college, loved by a wonderfully awesome girlfriend, and have your very own dog! Things are going really well for me (us?) right now, and I decided to write you since I know you’ve been feeling frustrated and confused that you have cerebral palsy on your left side, and you want and need answers. I’ll do my best to help answer some of your concerns now; so here goes:
Pursue hobbies that interest you, whether or not anyone believes you can or can’t do them. Our ability to “turn a wheelchair into lemonade,” as Zach Anner puts it so well, and the ability to overcome obstacles are two of our greatest strengths. Follow your heart and stay active! When things get hard, more often than not, doing those two things will help keep you happy, healthy, humble, honest and point you in the right direction.
Be patient. I know it’s hard to deal with the staring, mean words and bullying, but things will get better! Those people being mean or treating you poorly just have different lessons than you that they need to learn. Life isn’t just unfair for us, it’s unfair to everyone at some point or another. Strive to be prepared. Never forget this, as it’ll also help you remain happy, healthy, humble and honest! We all have our own paths, challenges, successes and failures. Focusing on one being better or worse than the other is time better spent laughing with or helping one another.
Never lose faith in anyone, especially yourself. You and those you trust are your greatest defenses when you need to keep anything negative away from you, and are the key to allowing how awesome you are within to continue to shine. When times get tough, you can always find comfort and strength in yourself, your friends and your family! People are going to say and do things that will hurt. When that happens, it’s usually because they feel down or unhappy themselves. They don’t know how else to deal with their own faults or mistakes, so they take those feelings out on someone else. Try not to take it to heart. Remember, you can’t control others, but you can control how you respond to what others say and do. I guess what I’m basically trying to say is this: Don’t let anyone change who you are or how you feel about yourself, unless YOU think the change is right or good for YOU.
Don’t be afraid or embarrassed to ask for something or express yourself. There are exceptions, times when keeping your thoughts, feelings, or needs to yourself is the right or best thing to do; but generally, no one else’s thoughts, feelings or needs matterany more or less than your own. Trust yourself. I’m not going to tell you it’ll always be easy, but you can handle any and everything that may be thrown your way (I’m proof of that!). Deep down in your heart of hearts, I know you know this is true.
You are NEVER alone. Even though you may not always be aware of it, a lot of children are also going through a lot of the things you are going through. Don’t worry though; there are TONS of people who are dedicated to making things more accessible and better for you, me, and everyone else with a physical or mental disability each and every day. And we are all cheering you on!
Sincerely,
27 year old Chris
08.06.12
PS: Keep up the good work and stare at the TV a little less. You’ll get glasses soon. We both know you look pretty funny until you get contacts, when you’re 17! You eventually start beating Mom, Dad and Mike at Scrabble. You get so good that Dad and Mike won’t even play you!
Chin up, smile wide, laugh often, and “Foot down, Buckaroo!” I know how much you hate hearing that, but now that I’m older, I understand why Mom and Dad get a kick out of saying it! Trust me, they still say it, so don’t waste your time trying to convince them not to. It doesn’t work! And whatever you do, continue to improve your writing skills. They come in handy too many times to count later on!

About the Author

Chris Windley lives in West Virginia. He is currently pursuing a Bachelor’s Degree in Psychology with a focus on people with physical and mental disabilities. His dream is to start and operate a charity designed to help people through hard times or to get back on their feet. If you’d like to write for the CP Family Network, please send a message to cpfamilyblog@gmail.com