Showing posts with label mobility. Show all posts
Showing posts with label mobility. Show all posts

Monday, May 6, 2013

Abilities Expo: Enhancing the Lives of People with Disabilities

Abilities Expo: Enhancing the Lives of People with Disabilities

By Stacey Bucklin
We recently posted an “In the News” story from CNN about assistive technology called“Rule Your Computer with a Head-Mounted Laser Beam.” The product intrigued me (who doesn’t love laser beams?), but what really piqued my interest was the event where it was featured, something called the Abilities Expo. I did a little digging and couldn’t resist sharing this resource with the CP Family Network community.
 

THE Event for People with Disabilities

The Abilities Expo, presented by Abilities365.com, plugs itself as “THE event for people with disabilities.” They even have programs targeted specifically for kids. Registration is FREE and grants you access to exhibitors offering the latest products and services, the opportunity to participate in free workshops, and world-class events and activities for all ages.
Their website states “For the past three decades, we’ve dedicated ourselves to making a better life for the 1 in 6 Americans with disabilities. This unique forum brings the Community together to learn, network and be empowered.” Expo exhibitors cater to children and adults with disabilities and their caregivers, offering products such as:
  • Assistive technology
  • Daily living aids
  • Medical equipment
  • Mobility products
  • Essential services
This video from www.karenkain.com seems to sum up the Expo pretty well. Karen is a Parent Ambassador for the 2013 Abilities Expos and has been attending the events for 17 years!
<iframe width="560" height="315" src="http://www.youtube.com/embed/XCupcga5TDc" frameborder="0" allowfullscreen></iframe>
 

Upcoming Expos

Abilities Expo events are held across the United States (and even abroad!) every few months. Chances are there’s an Expo coming to a city near you. Here’s a list of upcoming events:
  • NY Metro – May 3-5, 2013
  • Chicago – June 28-30, 2013
  • Houston – August 2-4, 2013
  • Boston – September 20-22, 2013
  • Singapore – November 8-10, 2013
  • San Jose – November 22-24, 2013
  • Los Angeles – February 28-March 2, 2014
  • Atlanta – March 14-16, 2014

Share Your Story

Have you been to an Abilities Expo or a similar event designed to serve people with disabilities? What did you think? Share your thoughts in the comments below!
 

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Wednesday, January 9, 2013

Cerebral Palsy Occupational Therapist

Does your child have an occupational therapist? Check out this informative article (small excerpt located below) about what to expect from your occupational therapist. 
 
Occupational therapy (OT) and rehabilitation deals primarily with the many muscles responsible for wrist, hand, and finger movements, muscles involved in facial expressions, and tongue movement and swallowing reflexes. Occupational therapists are trained in the rehabilitation of these muscle groups to help patients acquire or improve daily living skills needed for self-care, work, and play.
Occupational therapy uses a regiment of exercises, adaptive equipment, and training to help a child achieve the fine motor and life skills needed in work and play, further assisting a child in realizing goals and independence.
This type of therapy can be especially helpful to children with cerebral palsy, but any child experiencing challenges with swallowing, using eating utensils, holding and manipulating a pencil, dressing, or playing with small objects will benefit from occupational therapy.
 

Thursday, January 3, 2013

Wednesday, November 14, 2012

Hitesh’s Story: Turning Childhood Challenges into Motivation

Editor’s Note: Hitesh developed cerebral palsy after medical errors led to birth injuries. However, he hasn’t let his diagnosis slow him down! He approaches every challenge head-on to prove to himself and those around him that he can do anything he puts his mind to! Here is his story, in his own words.

By Hitesh Ramchandani

My Birth

On 20th January 1992 at 0144 hours I arrived on the planet called “Earth”. My mother and father were waiting for my arrival excitedly. I was their first child and unfortunately, they were not aware that their excitement was going to be changed into their biggest nightmare. The doctor made some mistakes during the delivery and as a result, I was born with cerebral palsy. I was labeled as disabled. My parents were taken aback, stunned and did not know how to react. Best part was, my mom did not even know what “cerebral palsy” was.

My Parents

My parents were strong and positive people. They knew deep down that God had given them such a child for a reason. They always treated me as a normal person. My father and mother had this strong belief that I would recover, never did they give up on me. The two of them always encouraged and motivated me to give my best in what ever I did. Doctors and teachers recommended to them to put me in a special school but they fought against it and made life for me as normal as any other child. They did not let the doctors’ opinion become their belief. They showered me with love. They spent a lot of time and money on my treatment. Due to that, I reached such a high level that whenever I looked down, I could not even measure how many levels and obstacles I have climbed! I love my parents – it  is such a blessing to have them.  My mom is the greatest woman – she used to take hours each day to make me drink a bottle of milk because she had to take caution that I did not choke due to my weak lungs.

My Childhood

Due to my problem, I had a tough childhood. People always made fun of me, imitated me. Some kids even thought I was an alien. This was due to the fact that during that time, the problem was bad. I could not even stand straight. My walking was like a drunken man walking. I had to use support; otherwise, I would lose balance. My speech was like an alien’s and people could not comprehend what I was saying. My muscles were extremely tight and tensed, especially muscles on my left, and I could not co-ordinate them. When people used to discourage me and make fun of the way I am, as a kid I would go home and cry. I still remember when I was 5 – I went to the park and no kid wanted to play with me because they thought I had a virus and if they touched me, they would be infected too! It makes me laugh when I remember that but during that moment I was so upset that I could not stop crying.  I thought God hated me and He was taking revenge – I was filled with anger and grief. Despite all the negativities, in my heart I always knew I was the best and I lived with a positive attitude. I knew that if I let the world break me, I would be finished before even beginning the race of life.
The positive things in my childhood were I had made amazing friends like Rahul Prem and Shiv Tulsiani. They are both my best buddies till today! They always encouraged me and lifted me up whenever I fell. I am also very lucky to have fantastic cousins like Vicky Vaswani and Karan Ramchandani; they are both like my elder brothers, backing me up whenever I need them. The best thing in my childhood was Natasha Ramchandani – the sweet little angel who entered my family when I was four. My mother gave birth to her on 1st June 1996. The first time I learnt how to walk was when Natasha was two and I was six – she started walking and I was surprised.  If she could walk, then why couldn’t I? Thus, I used that as a challenge and finally, I started walking.

Haig Boys’ Primary School

I entered Haig Boys’ Primary School at the age of 7. Every child is excited about the 1st day of school, but for me, it was the other way round. I was afraid that others would make fun of me and judge me. I was worried if I could cope with the schoolwork or not. I did not know if anyone would be my friend.
My classroom was on the 3rd floor and everybody used the stairs up to class but due to my disability, the school gave me the privilege to use a wheel-chair and a pass to use the lift. I was tempted to use those privileges, but I knew if I took advantage of them, I would never improve and remain where I was. Eventually, I decided to ditch the wheelchair and the lift pass and started to make my way up the stairs, just like everyone else – I did not need any “special” treatments.  The first time when everyone saw me climb up the stairs, despite the difficulty I faced each step, I became the school’s little hero. My principal was honoured to have me in the school and he believed I could be a symbol of inspiration to all the students. Despite my limitations, I always tried my best in my studies too and received passing marks most of the time, with some ‘A’ grades even.
There were times I failed, but my parents taught me that every failure is just another step closer to success. Most people fear failure but the most important thing they fail to understand is that failure brings one closer to success. Instead of regretting and lamenting on your mistakes and failure, learn from them and move on in life.
For example, if you have a gun in your hand and a bottle across from you, and your task is to shoot the bottle down, you just need to follow the steps.  Step one: you get ready, Step 2: you aim, Step 3: fire. If you miss, you won’t be crying right? You must repeat the three steps again and again until you get the bottle down. In fact, failing will just show you how inaccurate your aim was and the actions you need to take to make your next aim more accurate. So why can’t we apply the same concept in life?

Learning to Ride My Bicycle

My classmates would go cycling at the beach and I would be left out because I could not ride a bicycle. Thus, it became my motive to learn how to ride a bicycle. An average kid takes about 1-2 weeks to learn how to ride a cycle. It took me 3 months because of my condition – 91 days to be exact.
I used to practice cycling under my condominium everyday after school. Each day, I would come home with bruises on different parts of my body but still but I never gave up.  I was persistent.  I had to conquer this task!  One day I was practicing near the pool-side. I was so embarrassed that day because I ended up in the pool with my bike and so many people watching. I went home disappointed. I told myself, “never mind I will try harder tomorrow”. I was determined to learn this skill, despite the embarrassing failures that I encountered. On the 91st day, my body finally learned how to balance and I was riding a bicycle – IT  WAS BEAUTIFUL! The feeling was as good as flying.  I will never forget that day!
The moral is, don’t ever lose hope and give up. If I had given up on the 90th day, then I would have never seen the 91st day. Keep going and going, till you make it.

About the Author

Hitesh Ramchandani is now 20 years old and is pursuing his diploma in management studies at the Singapore Institute of Management. He is also taking a Neuro-linguistic programming course outside of school and is  a member of the Toast Master Club Singapore. His desire is to motivate everyone out there to never give up and to fight to the end. Most importantly, he wants to tell others, “don’t ever be discouraged by your problems because the bigger your problem, the bigger your destiny.”

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Monday, August 13, 2012

Electrical Stimulation Restores Mobility to Young Boy with Cerebral Palsy

Electrical Stimulation Restores Mobility to Young Boy with Cerebral Palsy

August 13th, 2012
From CBS DFW 
11 year old Matthew Hurt isn’t just walking better these days.  The North Texas boy’s running, jumping and riding have improved as well, all thanks to a device the size of an iPod.
Shortly after a premature birth, doctors diagnosed Matthew with mild cerebral palsy.  He’s developed cognitively like any other child his age, but the cerebral palsy resulted in weakness on his right side.  That led to a condition known as “foot drop” which causes a person to drag the toe of the shoe on the ground or slap the foot on the floor.
This caused Matthew to have an unnatural gait, and made it difficult for him to walk without tripping and falling.  And as a result, that made it hard to keep up with his friends.
However, doctors recently fit Matthew with a medical device.  It’s called the WalkAide.  The device is worn around the calf, just below the knee, and uses electrical stimulation to combat foot drop and restore mobility to people like Matthew.
Since wearing the WalkAide, Matthew’s gait has improved significantly. He can walk faster and farther before getting tired. He’s also able to keep up better with his friends when he’s on the golf course playing his favorite sport.
The WalkAide can also be used in patients living with traumatic brain injury, multiple sclerosis, stroke, and some spinal cord injuries.
Wanting to take some time this morning to shine a light on Wheelchair Accessible Vehicles.  Check out this awesome new truck, that the good folks at Mobility SVM have just launched.  They also make custom vans as well! Do you have a custom handicap modified vehicle?  If so, can you tell us where you purchased it?  I know many of our community members need this type of information.

http://bit.ly/handicappedvehicles

For more information on Cerebral Palsy please visit:
http://www.cpfamilynetwork.org

Thursday, August 9, 2012

New Walker for Children with Cerebral Palsy

Wanting to take some time to showcase a revolutionary product for children with Cerebral Palsy. This new walker that has wheels and bracing systems that make it easier than ever for children with CP to become more mobile.

The two-wheeled 
frame can be an ideal first device for some less involved children. It also provides progression for the child who is growing stronger and able to walk using the four-wheeled base. The two -wheeled frame prevents the child from falling forward or backward, and allows concentration on development of lateral balancing skills and weight shift.

Children can progress further to have adjustable stabilizers attached to the existing bracing system. This allows improvement in balance and stepping skill with a minimum amount of support. The stabilizers can be removed as strength and balance improve.

Would you be willing to try one of these walkers?

http://hartwalkermobilitysystems.com/

Tuesday, July 31, 2012

National Cerebral Palsy Awareness Week in Australia

National Cerebral Palsy Awareness Week in Australia

June 31, 2012
This week in Australia they are celebrating National Cerebral Palsy Awareness Week (CP Week) to recognise the achievements of people with cerebral palsy and to create greater awareness, understanding and acceptance.
CP Week 2012 will be held from Monday July 30th to Sunday August 5th. Through CP Week, Member Organisations work to make our community more inclusive, more accessible and more welcoming for people living with Cerebral Palsy. Support is seen throughout the week through activities, programs and initiatives.
The important message for our community is to focus on seeing people with cerebral palsy firstly just as people, and to work together to achieve full social inclusion.
“National Cerebral Palsy Awareness Week highlights that with the right support people with Cerebral Palsy can and do reach their potential, despite the economic, physical and attitudinal barriers often faced,” said Glenn Rappensberg, President, Cerebral Palsy Australia.
Here is an exclusive interview from Col Clifford as he talks with Angela Tillmans, the CEO of the Cerebral Palsy League, and Laura Scurr who has Cerebral Palsy and has graduated with a double degree from the USQ Toowoomba.
For further information please contact Cerebral Palsy Australia.

Choosing Your Child’s First Wheelchair

Choosing Your Child’s First Wheelchair

By Lee Vander Loop
CP Family Network Editor
About a third of children with cerebral palsy are non-ambulatory and will require the use of a wheelchair for transportation outside, indoors, or both. Getting the right wheelchair at an early age helps a child gain independence and all the confidence that can inspire.
When a child reaches a size where they can’t be carried safely, around 3 years old, it’s time to get a wheelchair. If you’re new to this need, it is easy to get overwhelmed by all of the choices. But as a parent who has dealt with this issue for many years, there are really only fourbasic considerations:
  • Is it comfortable?
  • Is it reasonably adaptable?
  • Does it provide the needed support and alignment?
  • Is it easy enough to transport?
That said, there’s an amazing array of wheelchairs and associated technology available today that didn’t exist even 10 years ago. Lightweight, ultra-light, electric, “smart,” sports, all-terrain and customized seating are just some of the wheelchair options for non-ambulatory children and adults in today’s world. There are even wheelchairs that incorporate gyroscopic technology and four-wheel drive.

Selecting a Wheelchair Seating System

Most hospitals and all rehabilitation centers offer “seating clinics.” This is where physical and occupational therapists evaluate a child’s needs and make recommendations for a wheelchair, a.k.a. seating system. Be aware that these clinics may deal with only certain manufacturers and therefore won’t be showing you what other options may be available.
A main consideration of therapists is to choose a seating system that distributes a user’s weight away from areas of the body that are most at risk for pressure sores. For someone who spends hours of their day in the sitting position, the parts of the body that are the most at risk for tissue breakdown include the ischial tuberosities, coccyx, sacrum and greater trochanters. The seating system also must provide stability, comfort, shock absorption and aid in seating posture.
Custom seating systems can be created for individuals with scoliosis or other complex muscular skeletal conditions when it’s obvious that standard seating systems aren’t suitable.Usatechguide.org, developed by the United Spinal Association, offers an impressive list of manufactures of custom and molded wheelchair seating systems.

Questions to Ask

You should ask these questions of whatever seating system your child’s therapists recommend:
  • How and why did the therapists select the style, options or seating system they are presenting?
  • Can the chair/seating system be adjusted for future growth, changes in posture, or function?
  • Can the wheelchair or seating system be folded or converted for easy transport?
  • Can the chair be used in a vehicle tiedown system (if you will be using a tiedown system)? If so, what adaptions need to be made?
  • What additional accessories are available, such as seating trays, clamps to attach switches or alternative communication devices?
  • What adaptations are being added and do they facilitate your child’s needs?
  • What type of headrest is being used and what parameters are being used in assessing the best headrest for your child?
  • What type of harness system will be used with your child’s new wheelchair or seating system and what is its crash-test rating? Examples of today’s offerings of harness systems can be found at Convaid.  A five-point restraint harness is recommended for children.

What about a Powered Wheelchair?

A Swedish study of wheelchair use among children with cerebral palsy found, not surprisingly, that children using powered wheelchairs experienced much greater independence than those that required adult pushing. Therefore, the researchers suggested that children be introduced to a powered wheelchair as soon as they can safely begin to use one.

Additional Resources

For additional advice from the CP Family Network, read Stroller and Wheelchair Selection.
The RESNA Wheelchair Service Provision Guide, developed by the Rehabilitation Engineering & Assistive Technology Society of North America, offers a wealth of information on wheelchair selection.
The major U.S. wheelchair manufacturers that offer pediatric power wheelchairs are: Invacare,Permobil, Pride Mobility, and Sunrise Medical.
National Registry of Rehabilitation Technology Suppliers is a national association that provides lists and locations of people who specialize in complex rehab wheelchairs and seating positioning systems.