A Note from a Special Kid to Special ParentsBy Sally Brown
Raising a child with cerebral palsy is full of mixed emotions. Both parents and child can at times feel confused, frustrated, joyous and grateful. This note from a special kid to special parents is intended to give both sides permission to express all of their emotions and embrace the life they’ve been given.
You are the perfect parents for me.I know that you did not sign up for a kid like me. I also know that you sometimes think you cannot face what it takes to raise me. I want you to know that this is not true. I believe that I chose you. Whatever you need to learn, you will learn. The strength you think you need will come from somewhere. The people you need to meet will show up when you need them.
This is the perfect life for me.My life is a very special one. I believe that I will impact the world in a unique and wonderful way. Remember this when your heart is breaking because you want a path for me that is so much easier than this one.
I need you to find your own spiritual path.The road we are on is not an easy one. To make it successfully, you will need all the spiritual strength you can muster for the tough days. You will need to help me when my spiritual strength is out the window. Often, you will see signs of my determination and be amazed by it. That is not enough. You will have to find your own answers. I am depending on you for it.
However you feel about me is OK.Sometimes you will feel tired and helpless and like you cannot care for me one more day. Sometimes you will be mad because there seems to be no escaping me. That is OK. There is no way you could take care of me without having those days.
Sometimes you may watch people look at me and be a bit embarrassed that I am not doing better. That does not make you a bad parent. It just means you are human.
Know that when you have lots of these days in a row, it is time for you to get somebody else to take care of me, just long enough for you to regenerate yourself. It is always important that you let people help you. I am depending on you to do whatever you need to do to take care of yourself.