http://www.cpfamilynetwork.
About: Cerebral Palsy Family Network is a 501-C3 non profit organization, whose mission is to provide medical and legal resources for families and their children with cerebral palsy.
Thursday, December 27, 2012
Doctors Using Cord Blood to Treat Cerebral Palsy
Have you considered storing cord blood for later use? Many children with cerebral palsy have benefited from this procedure. Read more about cord blood storage and the benefits in our latest "In the News" article.
http://www.cpfamilynetwork. org/in-the-news/doctors-using- cord-blood-to-treat-cerebral- palsy
http://www.cpfamilynetwork.
Christmas iPad, Digital Books Open New World of Learning
Did you give your child an iPad for Christmas? Will they be using it for school work? Are you struggling with where to find educational books online that aren't wildly expensive? Our good friend Valerie Chernek has provided us with an amazing resource for those looking for free textbooks for their children to read on the iPad. Read all about digital learning and where to find high quality e-books for free in our latest blog!
Wednesday, December 26, 2012
Advice to Expecting Parents about Assisted Delivery Using Vacuum Extraction
When a mother is unable to deliver a child on her own, assistive equipment may be used to help speed the birthing process. Because the need for vacuum extraction (VE) is always a possibility during childbirth, parents need to be aware of what it entails and what questions to ask of their doctor.
http://www.cpfamilynetwork.org/blogs/advice-to-expecting-parents-about-assisted-delivery-using-vacuum-extraction?utm_campaign=CPFN+Eblast+-+Dec+26.+2012&utm_medium=email&utm_source=newsletter&utm_content=Vacuum-Assisted+Delivery
http://www.cpfamilynetwork.org/blogs/advice-to-expecting-parents-about-assisted-delivery-using-vacuum-extraction?utm_campaign=CPFN+Eblast+-+Dec+26.+2012&utm_medium=email&utm_source=newsletter&utm_content=Vacuum-Assisted+Delivery
The Best Apps for Children with Cerebral Palsy
Did your child receive an iPad for Christmas? We have compiled a list of APPS you made find helpful. Let us know if there are any others the community should know about in the comments!
http://www.cpfamilynetwork.org/blogs/the-best-apps-for-children-with-cerebral-palsy
http://www.cpfamilynetwork.org/blogs/the-best-apps-for-children-with-cerebral-palsy
Man With Cerebral Palsy Driven By His Passion For Music
Some may say that Korey Soderman dances to a different beat. The 23-year-old music fanatic who was born with cerebral palsy has always been restricted to a wheelchair, but that has never stopped him from rock’n and roll’n.
http://www.cpfamilynetwork.org/in-the-news/man-with-cerebral-palsy-driven-by-his-passion-for-music
http://www.cpfamilynetwork.org/in-the-news/man-with-cerebral-palsy-driven-by-his-passion-for-music
Friday, December 21, 2012
Brother Shares Special Bond With Twin Who Has Cerebral Palsy
Here is a beautiful story of twin brothers who share a deep bond, even though one of them is severely handicapped. Read all about this heartwarming story in our latest "In the News" article.
http://www.cpfamilynetwork.org/in-the-news/brother-shares-special-bond-with-twin-who-has-cerebral-palsy
http://www.cpfamilynetwork.org/in-the-news/brother-shares-special-bond-with-twin-who-has-cerebral-palsy
Cerebral Palsy Doesn’t Stop Woman From Earning Black Belt
Have you ever tried martial arts training? It's great way to strengthen muscles and improve balance. Check out this story of a woman with cerebral palsy who just earned her black belt!
http://www.cpfamilynetwork.org/in-the-news/cerebral-palsy-doesnt-stop-woman-from-earning-black-belt
http://www.cpfamilynetwork.org/in-the-news/cerebral-palsy-doesnt-stop-woman-from-earning-black-belt
Dorsal Rhizotomy Operation Helps Young Man Achieve Dreams
Have you considered a dorsal rhizotomy operation? Here is one family that did and is seeing amazing benefits. Tell us your experiences and any questions you may have in the comments.
http://www.cpfamilynetwork.org/in-the-news/dorsal-rhizotomy-operation-helps-young-man-achieve-dreams
http://www.cpfamilynetwork.org/in-the-news/dorsal-rhizotomy-operation-helps-young-man-achieve-dreams
Wednesday, December 19, 2012
Don’t Hesitate to “Bother the Doctor” During Holidays
CP Family Network Medical Director Giles Manley, M.D., encourages parents to trust their instincts and contact their doctor if something seems wrong with their unborn child or infant over the holidays. He described a recent case where delayed medical intervention resulted in cerebral palsy:
I settled a case recently where a pediatrician sent an infant with severe jaundice home on New Year’s Eve with instructions to the parents to “check back in 2-3 days.” The baby had elevated levels of bilirubin in the blood, which is a sign that the liver is not cleansing the blood like it should, and is a serious condition if not treated quickly. The delayed treatment resulted in brain damage to the child.
So I always remind expectant parents, stand up for your rights as a patient over the holidays. If you think there is an issue with your pregnancy or your newborn baby, don’t let health care providers put off tomorrow what should be addressed today. If your doctor will be out of town, make sure you have his cell phone number and the name and phone number of the doctor who will be filling in for him or her. Then, don’t hesitate to use it if anything seems unusual.
To see a list of symptoms that warrant contacting your doctor, read Don’t Hesitate to “Bother the Doctor” During Holidays.
For more information please visit:
http://www.cpfamilynetwork.org
Tuesday, December 11, 2012
Students Visit Classmate With Cerebral Palsy
Students who found out their classmate with cerebral palsy was too sick to attend class decided they would just bring the class to him! Read more about this beautiful act of kindness in our latest "In The News" story.
http://www.cpfamilynetwork.org/in-the-news/students-visit-classmate-with-cerebral-palsy
http://www.cpfamilynetwork.org/in-the-news/students-visit-classmate-with-cerebral-palsy
Cerebral Palsy Doesn’t Stop Man From Being Adrenaline Addict
Our latest "In The News" story highlights a young man with cerebral palsy who wouldn't let being in a wheelchair stop him from being a thrill-seeker. Andrew Giffin proves just because you are disabled doesn't mean you can't lead a life full of adventure.
http://www.cpfamilynetwork.org/in-the-news/cerebral-palsy-doesnt-stop-man-from-being-adrenaline-addict
http://www.cpfamilynetwork.org/in-the-news/cerebral-palsy-doesnt-stop-man-from-being-adrenaline-addict
Thursday, December 6, 2012
Empty Stocking Fund: Providing Christmas Cheer for Special Needs Families
Raising a special-needs child can be very
costly. This can mean money for Christmas presents can be hard to come
by. A charity organization in Amarillo, Texas created the "Empty
Stocking Fund" to help special-needs families have a Merry Christmas.
http://www.cpfamilynetwork.org/stories/empty-stocking-fund-providing-christmas-cheer-for-special-needs-familie
http://www.cpfamilynetwork.org/stories/empty-stocking-fund-providing-christmas-cheer-for-special-needs-familie
Wednesday, December 5, 2012
Joy Prom Allows Special Needs Students
Do you all know about Joy Prom? It is a unique
prom created for children with special needs. It is a beautiful way to
give special needs children a moment they may otherwise never get.
http://www.cpfamilynetwork.org/in-the-news/joy-prom-allows-special-needs-students
http://www.cpfamilynetwork.org/in-the-news/joy-prom-allows-special-needs-students
The Total Guide: Home Buying for People With Disabilities
Have
you ever wondered how to go about buying a home? Find out more about
programs and assistance that can make home ownership a reality for those
with disabilities in our latest "In The News" article.
http://www.cpfamilynetwork.org/in-the-news/the-total-guide-home-buying-for-people-with-disabilities
http://www.cpfamilynetwork.org/in-the-news/the-total-guide-home-buying-for-people-with-disabilities
How To Adapt Toys For Children With Disabilities
With Christmas right around the corner, do you
often wish there were more disability-friendly toys? Ever wonder how
you could adapt popular toys for your disabled child to enjoy? The good
folks at Nationwide Children’s Hospital spent the weekend showing
parents how to modify existing toys with disability-friendly features.
Read more about this process in our latest "In The News" article.
http://www.cpfamilynetwork.org/in-the-news/how-to-adapt-toys-for-children-with-disabilities
http://www.cpfamilynetwork.org/in-the-news/how-to-adapt-toys-for-children-with-disabilities
High School Senior Doesn’t Let Cerebral Palsy Slow Him Down
Doctors weren’t sure whether Ethan Schumann
would live or die when he was born two months premature. Today Ethan is
#1 in his high school senior class. Read more about Ethan and his
inspirational story in our latest "In The News" story.
http://www.cpfamilynetwork.org/in-the-news/high-school-senior-doesnt-let-cerebral-palsy-slow-him-down
http://www.cpfamilynetwork.org/in-the-news/high-school-senior-doesnt-let-cerebral-palsy-slow-him-down
Inventors Called on to Develop Solar Powered Wheelchairs for People with Cerebral Palsy
Earlier this year, "World CP Day" held a
global contest asking for inventors, designers, and developers to come
up with ideas that would change the world for those with cerebral palsy.
There were hundreds of submissions and the organization has settled on 3
that they think could make the biggest impact. Read about the 3 ideas
in our latest "In The News" article.
http://www.cpfamilynetwork.org/in-the-news/inventors-called-on-to-develop-solar-powered-wheelchairs-for-people-with-cerebral-palsy
http://www.cpfamilynetwork.org/in-the-news/inventors-called-on-to-develop-solar-powered-wheelchairs-for-people-with-cerebral-palsy
Student’s Work May Help Diagnose Cerebral Palsy Earlier
Do you wish hospitals were able to diagnosis
cerebral palsy earlier? Can you imagine being able to start treatment
within days rather than months or years? A student at Virginia Tech is
working on being able to do just that.
http://www.cpfamilynetwork.org/in-the-news/students-work-may-help-diagnose-cerebral-palsy-earlier
http://www.cpfamilynetwork.org/in-the-news/students-work-may-help-diagnose-cerebral-palsy-earlier
Heartwarming Video of Wrestler Who Lets Boy with Cerebral Palsy Win
Our latest "In the News" story showcases a
young man who goes above and beyond the call of duty to make a classmate
with cerebral palsy feel like a winner.
Do you all have similar stories of compassion for the disabled? Tell us about them in the comments.
http://www.cpfamilynetwork.org/in-the-news/heartwarming-video-of-wrestler-who-lets-boy-with-cerebral-palsy-win
Do you all have similar stories of compassion for the disabled? Tell us about them in the comments.
http://www.cpfamilynetwork.org/in-the-news/heartwarming-video-of-wrestler-who-lets-boy-with-cerebral-palsy-win
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